Vanity, Oxygen, and the Things That Keep Us Alive

Vanity is a funny thing. You think you’ve outgrown it until sarcoidosis hands you tubing, batteries, and a mirror you didn’t ask for. Looking back from 2026, I can tell you this: the hardest prescriptions aren’t the pills. They’re the ones that make you visible—and force you to decide what staying alive is worth.

Sarcoidosis, Side Effects, and the Grapefruit That Tried to Take Me Out: A Love Letter to Doing Your Own Research

You know that moment when the doctor confidently hands you a prescription like it’s a golden ticket back to Normal Person Land—no questions, no footnotes, just “take this twice a day forever” and try not to die in the meantime? Yeah. In my early sarcoidosis era (back when I was younger, more trusting, and still believed “the system” had my back), I learned the hard way that the danger isn’t always the pill… sometimes it’s what you’re sipping while you swallow it. And the culprit was sitting in my fridge, looking innocent and delicious.

Exercising With Chronic Illness: Heart Failure, Sarcoidosis, and Recovery

A new episode of A Body Rebels: A Chronic Illness Podcast is now available. In this episode of A Body Rebels: A Chronic Illness Podcast, I talk about exercise while living with heart failure, sarcoidosis, and severe fatigue after movement. A walk feels good while I’m outside, then the real cost shows up at home …