Private Chef, Writer & Podcaster
Ever notice how sarcoidosis doesn’t just mess with your lungs (and your whole life), it also turns random medical appointments into surprise personality tests—for you and the staff? One day in a pulmonologist’s office, a not-so-small “cleanliness” request collided with a not-so-gentle attitude… and let’s just say Prednisone Me had opinions.
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. I’m sharing what happened when a limping black bear crossed the road in front of me on a quiet drive through rural Connecticut. Watching that injured animal continue into the woods brought my own experience with chronic illness into sharper focus. …
Continue reading "What a Black Bear Taught Me About Chronic Illness"
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. I missed an episode this week, and there was a very good reason. My fifth attempt to come off prednisone after twenty years hit me harder than I ever expected. With methotrexate now being used as a steroid-sparing medication, I’ve managed …
Continue reading "Prednisone Withdrawal: When My Body Finally Said Enough"
It was supposed to be a simple late-afternoon date—just my wife, a quiet walk, and a brief illusion of normalcy. But sarcoidosis doesn’t care about intentions, especially when hills, stairs, and pride enter the picture. One New York City afternoon and one very confident staircase delivered a realization I apparently needed nineteen years to accept.
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. When a chronic illness flare sends me back to bed with oxygen, physical exhaustion can quickly become fear about my future. I start wondering whether I’ll recover or whether my independence is slipping away permanently. I used to hide those fears …
Continue reading "The Bad Day I Fear Won’t End: Chronic Illness and an Uncertain Tomorrow"