Private Chef, Writer & Podcaster
Living with chronic illness brings sarcoidosis, heart failure, and an ICD that now syncs to my iPhone like it’s tracking my heart for a fitness challenge—but I’m grateful for the technology keeping me alive. This updated look at remote monitoring, reversed pulmonary hypertension, and modern cardiac care shows why complaining less and appreciating more can change everything.
Living with sarcoidosis means navigating prednisone side effects, adrenal failure, and the emotional chaos of a drug that saves your life while stealing your peace. After decades on prednisone—and four disastrous attempts to taper off—I’ve accepted that I’m on it for life, begrudgingly, impatiently, and with the kind of humor only chronic illness veterans understand.
Living with chronic illness means collecting odd symptoms like souvenirs, but nothing prepared me for the nerve pain, phantom crawling, and burning sting shingles left behind. Here’s my long, winding, occasionally sarcastic journey with post-herpetic neuralgia, chronic pain, homeopathic experiments, and life with sarcoidosis—plus why an imaginary ant still runs laps on my face whenever it feels like it.
Living with cardiac sarcoidosis isn’t a five-year countdown—it’s a masterclass in ignoring terrifying survival statistics, baffling specialists, and learning how to live fully in the moment. After twenty years of sarcoidosis, heart failure, and even pulmonary hypertension that mysteriously reversed itself, I’m still here, still cooking, still sarcastic, and still proving that numbers don’t get the final say. sarcoidosis
Living with sarcoidosis, heart failure, and a grab-bag of medications means my energy cycle runs on its own chaotic schedule. Some days I’m unstoppable; others I’m barely upright. Here’s how I navigate the ups, downs, and surprisingly emotional middle ground of chronic illness.
Tate Basildon 