Two new podcast episodes explore living with sarcoidosis, invisible illness, and finding purpose when life looks smaller than expected. Honest reflections on chronic illness, meaning, and being unseen — now streaming on Thoughts While Surviving: Chronic Illness.
Defying the Odds: How I Keep Outliving Every Sarcoidosis Statistic Thrown at Me
Living with sarcoidosis and heart failure means facing down terrifying statistics, clueless predictions, and medical journals that act like they’re auditioning to narrate a true-crime documentary about my lungs. But in the middle of all that doom, I’ve learned to rewrite the script, trust my stubborn body, and keep choosing a life filled with humor, resilience, love, and the occasional hummingbird cameo.
The Three-Day Salt Binge That Nearly Sank Me
Living with sarcoidosis and heart failure means salt isn’t just a seasoning—it’s sabotage. After three reckless days of comfort food, I learned (again) that a few bites of joy can turn into days of swelling, exhaustion, and regret. Chronic illness has a way of reminding you that indulgence always comes with interest.
Two Stories, One Survival: How Support Groups Failed Me and Why I Stopped Complaining
Living with sarcoidosis, heart failure, and chronic illness has taught me a lot—mostly what doesn’t help. This week’s podcast episodes explore why I walked away from support groups, how I stopped complaining, and what it really takes to survive life with a rebellious body and a stubborn sense of humor.
Respect My Air: A Chef’s Rant on Smokers, Scents, and Secondhand Stupidity
I don’t know who needs to hear this, but cigarette smoke is not an air freshener. For those of us living with sarcoidosis or any lung condition, your “right to smoke” feels like my right to suffocate. Here’s one chef’s not-so-gentle reminder that public air is shared property—so stop blowing toxins in my direction and pretending it’s perfume.
