Private Chef, Writer & Podcaster
In the middle of managing sarcoidosis and all the glamorous paperwork life insists on assigning, I keep circling back to one voice I can still hear clearly: my mother’s—suddenly brighter, younger, almost mischievous—when an old name resurfaced after decades. It started as a phone call and ended up becoming one of those stories that quietly rearranges your insides… especially when you never get the ending you thought you’d get.
A chef living with heart failure and sarcoidosis reflects on what it feels like to age into the very demographic whose medical brochures once made him feel like an anomaly—and why finally fitting the picture is both comforting and unsettling in equal measure.
Living with sarcoidosis and heart failure means even simple tasks can feel like climbing a mountain. This raw, heartfelt reflection from a private chef and debut novelist explores chronic fatigue, aging, and the exhausting work of keeping up appearances while living with a chronic illness.