Living with heart failure and sarcoidosis means my heart sometimes behaves like an untrained sous-chef—dropping beats, burning the sauce, and sending everyone into panic mode. After a surprise fibrillation episode, some extra beats, and a cardiologist who ambushed me with a flu shot before I could protest, I’m trying to stay calm, breathe, and avoid yet another hospital stay.
•When My Heart Rebelled for Two Minutes—and My AICD Stepped In
Back in 2010, a simple walk with my dog turned into a two-minute dance with death when my heart went into fibrillation. Thanks to my implanted defibrillator, I lived to tell the story—and to learn what it means to actually listen to my body when it decides to go rogue.
Living with a Heart That Beats on Borrowed Time: My Journey with Heart Failure and an AICD
In 2007, a routine heart procedure turned into a life-changing diagnosis: heart failure. Eighteen years later, I’m still here—living with sarcoidosis, a defibrillator in my chest, and the constant awareness that my next heartbeat might depend on a tiny piece of metal and code. This is what surviving with an AICD really feels like—equal parts miracle, nuisance, and reminder to keep going.
The Vacation That Tried to Break Me (But I’m Still Here, Sarcoidosis and All)
Living with sarcoidosis can feel like starring in a long-running medical sitcom where the plot twists pop up at the most inconvenient times, including when you’re on vacation trying to rest. Without giving too much away, let’s just say my quiet beach getaway took an unexpected turn—and you’ll have to read the full post to see how a simple trip turned into something far stranger.
