If You’d Told Me Twenty Years Ago: Sarcoidosis, Heart Failure, and the Audacity of Still Being Here

Twenty years ago, I would’ve laughed at the idea that sarcoidosis could slowly rewrite my life until my heart needed supervision and my lungs required accessories. I didn’t know my future involved acronyms, oxygen tubing, and a pharmacy relationship built on mutual trust. If your body has ever quietly changed the rules while you were busy living… this one’s for you.

The Prednisone Demon: Chronic Illness, Steroid Side Effects, and Survival

A new episode of A Body Rebels: A Chronic Illness Podcast is now available. Living with chronic illness often means depending on treatments that help one part of the body while making another part miserable. In this episode, I talk about prednisone, steroid side effects, sarcoidosis, sleep disruption, hunger, medication dependence, and the strange emotional …

When Your Heart Breaks the Rules: My Sarcoidosis Stress Test Plot Twist

I showed up for a stress test expecting the usual treadmill humiliation—just me, some wires, and the subtle reminder that sarcoidosis doesn’t care about my plans. Instead, the numbers went rogue, the tech started bargaining with the screen, and I walked out with the kind of plot twist that makes you stare at your own body like, “Excuse me, who authorized this?”