Living with sarcoidosis and heart failure means juggling oxygen checks, blood pressure readings, fluid retention tests, and everything else my body dreams up when it’s bored. Here’s how I track my symptoms, keep my numbers stable, and try to stay sane while traveling, working, and dealing with water retention that refuses to follow the rules.
Growing Older With Heart Failure: Finding Myself Between Generations
A chef living with heart failure and sarcoidosis reflects on what it feels like to age into the very demographic whose medical brochures once made him feel like an anomaly—and why finally fitting the picture is both comforting and unsettling in equal measure.
The Mysterious Companion Who Never Leaves My Side: An Unexpected Friendship With My Lifesaving Device
Living with sarcoidosis and heart failure means sharing life with a quiet, loyal device that tracks every flutter, every scare, and every stubborn heartbeat. This is the story of the strange, funny, and unexpectedly comforting friendship that has kept me alive for nearly two decades.
When Prednisone Turns You Into a Walking Mood Swing: A Chef’s Comically Chaotic Reality
Battling sarcoidosis while riding a packed NYC train full of coughing strangers is already a thriller, but add a prednisone dose strong enough to summon my inner demon and suddenly chronic illness becomes a full-blown adventure in mood swings, resilience, and survival with humor.
Why My Chronic Illness Blog Isn’t a Medical Advice Hotline (Even If It Looks Like One)
Living with sarcoidosis already feels like starring in a medical drama I never auditioned for, so imagine my confusion when I got invited to join a “health care bloggers code of ethics” because someone mistook my personal chronic-illness ramblings for professional medical advice. This is what happens when a chef with a faulty immune system uses a heart-and-lung header graphic and the internet panics.
