Ever waited for a blog post like it was your favorite dish at a slow-cooking restaurant? This chronic illness chef with sarcoidosis doesn’t post daily—and that’s okay. Here’s why blog consistency isn’t the cure-all, especially when life, health, and heart failure come to dinner uninvited. (Yes, it’s called chronic illness for a reason.)
The Month I Waited Saved My Life: Living With a Defibrillator, Fear, and Sarcoidosis
Waking up to heart failure, sarcoidosis, and a life sentence of meds wasn’t in my five-year plan. Neither was an implantable defibrillator with discontinued leads that could’ve killed me. Here’s how one month of stubborn hesitation saved my life. Chronic illness, heart failure, and sarcoidosis survivors—this one’s for you.
How I Became a Medical Mystery (Or: Why My Doctor Thinks I’m Immortal)
A reader wrote to me with a blunt question: how the hell am I still alive and semi functional with sarcoidosis, heart failure, and a heart that occasionally tries to be creative with rhythm Just between us the answer is far more chaotic and heartfelt than any clinical chart will ever show Sarcoidosis taught me to take every prognosis with salt and faith and maybe a dash of rebellion
Why My Doctor’s Office Needs a Mute Button (and Other Adventures in Patient Privacy)
We’ve all handed over our medical privacy to forms and HIPAA posters, but why does the reception desk still broadcast your address and phone number like morning radio? As someone juggling sarcoidosis, heart failure, and the joy of frequent waiting rooms, I’ve turned accidental oversharing into a personal crusade. Welcome to the absurdly human side of patient privacy—where your lungs aren’t the problem, but your info is.
Germaphobe Chronicles (Couples Edition): Our Life as the Pen-Hating, Laundry-Obsessed Sarkies
Long before sarcoidosis turned my immune system into a half-functioning smoke detector, my wife and I were card-carrying germaphobes. Yes, both of us. We cringe at communal pens, we wash clothes after stepping outside to walk the dog, and we carry more Purell than snacks. Here’s why we’d rather bring our own pen than touch yours—and why every shirt that sees daylight gets washed. (sarcoidosis included)
