chronic illness – Page 9

Why I Absolutely Can’t Stand Halloween (And What It Says About Us)

As a chef battling sarcoidosis and heart failure, debris from a life that refuses to behave, I’m here to tell you why Halloween — creepy skeletons, gore-fest lawns, serial-killer mannequin dioramas and all — feels wrong in a way that psychology backs up. If you’ve ever felt alienated by the “fun” of Halloween or want to understand why it grates on your nerves (and mine), read on for a mix of sarcasm, heart, and insight into fear, ritual and chronic illness living.

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•The High Price of Staying Alive: Chronic Illness, Insurance, and America’s Health Care Circus

Living with chronic illness means juggling more than fatigue and pain—it’s the nonstop cost of staying alive. From $280,000 heart surgeries to sky-high insurance premiums, surviving in America’s healthcare system feels like a full-time job. Here’s what it’s really like to navigate life, love, and medical debt when your body—and the system—won’t cut you a break.

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Living with a Heart That Beats on Borrowed Time: My Journey with Heart Failure and an AICD

In 2007, a routine heart procedure turned into a life-changing diagnosis: heart failure. Eighteen years later, I’m still here—living with sarcoidosis, a defibrillator in my chest, and the constant awareness that my next heartbeat might depend on a tiny piece of metal and code. This is what surviving with an AICD really feels like—equal parts miracle, nuisance, and reminder to keep going.

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•Tired of Being Tired: Life, Chronic Illness, and the Weight of Keeping Up

Living with sarcoidosis and heart failure means even simple tasks can feel like climbing a mountain. This raw, heartfelt reflection from a private chef and debut novelist explores chronic fatigue, aging, and the exhausting work of keeping up appearances while living with a chronic illness.

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When Strangers Grab Your Phone: Realizing Just How Much of My Life Lives in This Glass Box

Ever had someone snatch your phone while you were just trying to show them a picture? Twice in one day, it hit me how much of my entire life—accounts, passwords, memories, even my brain power—now lives inside this little iPhone. As a chef with sarcoidosis and heart failure who once memorized entire bank account numbers and directions without GPS, I’m wrestling with the good, bad, and ridiculous sides of tech dependence.