Living with chronic illness takes more than blind faith—it takes grit, humor, and a little rebellion. As a chef with sarcoidosis and heart failure, I’ve seen how spirituality can both heal and harm when people rely too heavily on divine intervention instead of their own strength. Here’s my honest take on faith, health, and the real work of living through it.
The High Price of Staying Alive: Chronic Illness, Insurance, and America’s Health Care Circus
Living with chronic illness means juggling more than fatigue and pain—it’s the nonstop cost of staying alive. From $280,000 heart surgeries to sky-high insurance premiums, surviving in America’s healthcare system feels like a full-time job. Here’s what it’s really like to navigate life, love, and medical debt when your body—and the system—won’t cut you a break.
What You Don’t See: A Chef’s Reflection on Living With Sarcoidosis
Living with sarcoidosis is like starring in a medical drama no one else can see—one where you look perfectly fine on the outside while your organs do the cha-cha backstage. Back in 2011, when all of this felt new and terrifying, I kept most of it to myself. Now, looking back from 2025, I can’t help but revisit how invisible everything looked… especially to everyone who insisted I “didn’t look sick.” There’s a lot more to the story, but you’ll have to come inside for the rest.
Craving the Beach Before Summer: Chronic Illness, Sunlight, and the Need to Escape
Even before summer hits, my body—and soul—longs for sunlight and salt air. For those living with chronic illness, like sarcoidosis, the dream of a beach getaway isn’t just about fun—it’s about healing, freedom, and survival.
