After twenty years of living with sarcoidosis, heart failure, and more hospital visits than I can count, I’ve learned one thing: healthcare workers can make or break your experience. Some are angels in scrubs; others act like you’ve ruined their day just by existing. Here’s a raw, unfiltered look at what happens when compassion gets lost in the waiting room.
•Roller Skating With Sarcoidosis: Grieving My Old Body (Without Turning It Into a Life Sentence)
I saw a guy land a ridiculous roller-skating trick in a beach town and my brain immediately volunteered my body for a stunt it absolutely did not agree to. Living with sarcoidosis has taught me that nostalgia can be sweet, savage, and weirdly funny—and sometimes the bravest move is not proving anything at all.
Keep Your Twigs and Your Verses: A Survival Guide to Unwanted Evangelism
Ever been spiritually ambushed by someone quoting scripture or pushing miracle twigs like they’re handing out eternal life samples at Costco? As a spiritual but not religious chef living with chronic illness, I’ve got some thoughts—and a few logs of my own. Here’s my no-pamphlet-needed take on boundaries, belief, and why passion doesn’t need to feel like a sales pitch.
Learning to Sit With the Quiet: How Silence Became My Survival Skill While Living With Sarcoidosis
Living with sarcoidosis has a way of changing how you hear the world. When your body is already loud with symptoms, appointments, and internal negotiations, silence stops feeling empty and starts feeling necessary. This reflection explores how quiet moments—unexpected, unplanned, and deeply human—became one of my most reliable survival tools.
Why I Broke Up with Grammarly—and Why This One’s Staying Final
I used to think tools like Grammarly were lifesavers—especially when brain fog, fatigue, and sarcoidosis made every sentence feel like it had to fight its way onto the page. But somewhere between helpful corrections and unsolicited judgment, something shifted. This isn’t a tech review. It’s a breakup story about voice, truth, and why I finally chose myself over an algorithm.
