Private Chef, Writer & Podcaster
Living with sarcoidosis and heart failure means juggling oxygen checks, blood pressure readings, fluid retention tests, and everything else my body dreams up when it’s bored. Here’s how I track my symptoms, keep my numbers stable, and try to stay sane while traveling, working, and dealing with water retention that refuses to follow the rules.
A quick trip to the store turned into an unexpected memory about life with chronic illness, oxygen tanks, and the hilariously awkward way two grown men with invisible diseases failed to communicate. If you’ve ever lived with sarcoidosis, heart failure, or just the chaos of being human, this tiny moment might hit home.
In 2007, a routine heart procedure turned into a life-changing diagnosis: heart failure. Eighteen years later, I’m still here—living with sarcoidosis, a defibrillator in my chest, and the constant awareness that my next heartbeat might depend on a tiny piece of metal and code. This is what surviving with an AICD really feels like—equal parts miracle, nuisance, and reminder to keep going.
Tate Basildon 