Living with sarcoidosis, heart failure, and a body that treats oxygen like a luxury upgrade means learning to laugh at what hurts, carry what scares you, and drag that oxygen tank around even when you’re tired of feeling “not like the man you used to be.” This is my messy, honest, slightly sarcastic reminder that using oxygen doesn’t mean giving up—it means choosing to stay alive.
Monitoring My Chaotic Body: Life With Sarcoidosis, Heart Failure, and a Pocketful of Devices
Living with sarcoidosis and heart failure means juggling oxygen checks, blood pressure readings, fluid retention tests, and everything else my body dreams up when it’s bored. Here’s how I track my symptoms, keep my numbers stable, and try to stay sane while traveling, working, and dealing with water retention that refuses to follow the rules.
When Your Heart Throws a Tantrum: Surviving Stress Tests, Chest Pain, and Chronic Illness Comedy
Living with heart failure and sarcoidosis means my heart occasionally behaves like a dramatic actor auditioning for a medical soap opera. Between chest pains, racing pulses, doubled diuretics, and the dreaded exercise stress test, I’m learning to survive it all with humor, grit, and just enough sarcasm to stay upright.
The Day I Met My Oxygen Twin (And Learned Absolutely Nothing)
A quick trip to the store turned into an unexpected memory about life with chronic illness, oxygen tanks, and the hilariously awkward way two grown men with invisible diseases failed to communicate. If you’ve ever lived with sarcoidosis, heart failure, or just the chaos of being human, this tiny moment might hit home.
Growing Older With Heart Failure: Finding Myself Between Generations
A chef living with heart failure and sarcoidosis reflects on what it feels like to age into the very demographic whose medical brochures once made him feel like an anomaly—and why finally fitting the picture is both comforting and unsettling in equal measure.
