A reader wrote to me with a blunt question: how the hell am I still alive and semi functional with sarcoidosis, heart failure, and a heart that occasionally tries to be creative with rhythm Just between us the answer is far more chaotic and heartfelt than any clinical chart will ever show Sarcoidosis taught me to take every prognosis with salt and faith and maybe a dash of rebellion
Why Fatigue Hits Harder Than a Chef’s Knife: Living with Sarcoidosis, Heart Failure, and Zero Patience
Tired? Try living with sarcoidosis, heart failure, and a side of snark. In this funny, raw, and relatable chef’s diary of chronic fatigue, I explore what happens when your brain wants to do everything and your body files for early retirement. Fatigue, chronic illness, medication side effects, and stubborn hope collide in this reflective rant — served with humor and a bold refusal to give in.
When Your Heart Throws a Tantrum and Your Doctor Ambushes You With a Flu Shot
Living with heart failure and sarcoidosis means my heart sometimes behaves like an untrained sous-chef—dropping beats, burning the sauce, and sending everyone into panic mode. After a surprise fibrillation episode, some extra beats, and a cardiologist who ambushed me with a flu shot before I could protest, I’m trying to stay calm, breathe, and avoid yet another hospital stay.
Wiping the Slate Clean: Why My Sarcoidosis and Heart Meds Actually Work
Starting with a “clean slate” isn’t just an expression—it’s kind of my secret weapon in surviving sarcoidosis, heart failure, and the great prednisone weight gain saga. From resisting meds as a kid to relying on homeopathy and careful research now, I’ve learned that empowering yourself with knowledge, mindful eating, and a dash of common sense can make chronic illness just a little bit less chaotic. Here’s how I went from fighting every pill to trusting what my body truly needs—and why you might want to wipe your slate clean too. sarcoidosis
•Why Gratitude Beats Complaining When Your ICD Is Busy Keeping You Alive
Living with chronic illness brings sarcoidosis, heart failure, and an ICD that now syncs to my iPhone like it’s tracking my heart for a fitness challenge—but I’m grateful for the technology keeping me alive. This updated look at remote monitoring, reversed pulmonary hypertension, and modern cardiac care shows why complaining less and appreciating more can change everything.
