After twenty years of living with sarcoidosis, heart failure, and more hospital visits than I can count, I’ve learned one thing: healthcare workers can make or break your experience. Some are angels in scrubs; others act like you’ve ruined their day just by existing. Here’s a raw, unfiltered look at what happens when compassion gets lost in the waiting room.
Why I’d Rather Crawl Than Ask for Help: A Chronic Illness Reality
Living with sarcoidosis and heart failure has taught me many things—chief among them? Asking for help often leads to more stress than it’s worth. If you’re chronically ill, fiercely independent, or just tired of being disappointed by well-meaning offers gone sideways, this one’s for you.
Death by Magnet: When MRI Protocol Fails, Chronic Illness Warriors Take Note
A tragic MRI accident in Westbury, NY, has one private chef and chronic illness survivor reflecting on medical safety, invisible disabilities, and the emotional weight of navigating life with sarcoidosis and heart failure. For fellow spoonies and debut authors juggling symptoms, appointments, and everything in between—this one hits close.
