Living with sarcoidosis and heart failure means facing down terrifying statistics, clueless predictions, and medical journals that act like they’re auditioning to narrate a true-crime documentary about my lungs. But in the middle of all that doom, I’ve learned to rewrite the script, trust my stubborn body, and keep choosing a life filled with humor, resilience, love, and the occasional hummingbird cameo.
Losing My Voice but Not My Humor: Living With Sarcoidosis, Symbicort, and a Stubborn Set of Lungs
Sarcoidosis may steal your breath, your energy, and—if you’re lucky—your voice, but it can’t take your sense of humor. As a chef living with chronic illness and heart failure, I’ve learned to navigate breathing tests, inhalers, and vocal cord drama with sarcasm, garlic, and a pinch of grit. Here’s what happens when Symbicort and I go another round in the fight for air—and why I still keep cooking, writing, and laughing through it all.
