Someone decided my take on living with sarcoidosis was “too upbeat,” like I’m out here harmonizing with woodland creatures while my body runs a nonstop group project I didn’t sign up for. But if you’ve ever tried to stay afloat in chronic illness while strangers critique your coping skills, you already know the real story isn’t about pretending—it’s about refusing to let misery run the whole kitchen…
Two New Podcast Episodes on Living With Sarcoidosis, Purpose, and Invisible Illness
Two new podcast episodes explore living with sarcoidosis, invisible illness, and finding purpose when life looks smaller than expected. Honest reflections on chronic illness, meaning, and being unseen — now streaming on Thoughts While Surviving: Chronic Illness.
•Roller Skating With Sarcoidosis: Grieving My Old Body (Without Turning It Into a Life Sentence)
I saw a guy land a ridiculous roller-skating trick in a beach town and my brain immediately volunteered my body for a stunt it absolutely did not agree to. Living with sarcoidosis has taught me that nostalgia can be sweet, savage, and weirdly funny—and sometimes the bravest move is not proving anything at all.
Stop Saying These “Compliments” — They’re Not Kind, They’re Just Loud
Some of the most painful moments don’t come from cruelty, but from “kindness” said out loud without a second thought. Living with sarcoidosis has taught me that certain compliments land more like paper cuts than comfort—and once you hear them, you can’t un-hear them.
