Private Chef, Writer & Podcaster
Ever notice how sarcoidosis doesn’t just mess with your lungs (and your whole life), it also turns random medical appointments into surprise personality tests—for you and the staff? One day in a pulmonologist’s office, a not-so-small “cleanliness” request collided with a not-so-gentle attitude… and let’s just say Prednisone Me had opinions.
Twenty years ago, I would’ve laughed at the idea that sarcoidosis could slowly rewrite my life until my heart needed supervision and my lungs required accessories. I didn’t know my future involved acronyms, oxygen tubing, and a pharmacy relationship built on mutual trust. If your body has ever quietly changed the rules while you were busy living… this one’s for you.
Starting with a “clean slate” isn’t just an expression—it’s kind of my secret weapon in surviving sarcoidosis, heart failure, and the great prednisone weight gain saga. From resisting meds as a kid to relying on homeopathy and careful research now, I’ve learned that empowering yourself with knowledge, mindful eating, and a dash of common sense can make chronic illness just a little bit less chaotic. Here’s how I went from fighting every pill to trusting what my body truly needs—and why you might want to wipe your slate clean too. sarcoidosis
Someone decided my take on living with sarcoidosis was “too upbeat,” like I’m out here harmonizing with woodland creatures while my body runs a nonstop group project I didn’t sign up for. But if you’ve ever tried to stay afloat in chronic illness while strangers critique your coping skills, you already know the real story isn’t about pretending—it’s about refusing to let misery run the whole kitchen…
Living with sarcoidosis means navigating prednisone side effects, adrenal failure, and the emotional chaos of a drug that saves your life while stealing your peace. After decades on prednisone—and four disastrous attempts to taper off—I’ve accepted that I’m on it for life, begrudgingly, impatiently, and with the kind of humor only chronic illness veterans understand.