The Dad Who Showed Up

Living with sarcoidosis and heart failure, I’ve learned a thing or two about showing up even when life doesn’t make it easy. My biological father didn’t, but my stepdad—my real dad—did. This is a story about humor, strength, and learning to face illness with a smile instead of a complaint.

Living with a Heart That Beats on Borrowed Time: My Journey with Heart Failure and an AICD

In 2007, a routine heart procedure turned into a life-changing diagnosis: heart failure. Eighteen years later, I’m still here—living with sarcoidosis, a defibrillator in my chest, and the constant awareness that my next heartbeat might depend on a tiny piece of metal and code. This is what surviving with an AICD really feels like—equal parts miracle, nuisance, and reminder to keep going.

The “What If” Game and the Man Who Didn’t Know He Was Sick Yet

There was a version of me in 2002—forty years old, a working chef, exhausted in ways that made no logical sense, and listening to doctors insist that every alarming symptom was “stress.” Now that sarcoidosis is a familiar part of my vocabulary, looking back on that time feels like watching a movie where you want to yell at the character to turn around. Revisiting that moment made me rethink the “what if” game entirely and wonder how differently life looks when you finally know what your body was trying to tell you.