The Prednisone Demon: Chronic Illness, Steroid Side Effects, and Survival

A new episode of A Body Rebels: A Chronic Illness Podcast is now available. Living with chronic illness often means depending on treatments that help one part of the body while making another part miserable. In this episode, I talk about prednisone, steroid side effects, sarcoidosis, sleep disruption, hunger, medication dependence, and the strange emotional …

I Am Not My Job Title (Or My Diagnosis List): Living With Sarcoidosis Without Letting It Name Me

In the U.S., “So what do you do?” is basically a handshake. And the moment you answer, people quietly file you into a mental drawer—salary range, social rank, usefulness, vibe. Add a diagnosis like sarcoidosis to the mix and suddenly you’re not even a person anymore, you’re a set of symptoms with a name tag. This is the story of how I learned to stop auditioning for other people’s categories—and how I keep choosing to be myself anyway, even when the world would rather label me than listen.