How I Outlived Every Cardiac Sarcoidosis Statistic (And Confused My Doctors in the Process)

Living with cardiac sarcoidosis isn’t a five-year countdown—it’s a masterclass in ignoring terrifying survival statistics, baffling specialists, and learning how to live fully in the moment. After twenty years of sarcoidosis, heart failure, and even pulmonary hypertension that mysteriously reversed itself, I’m still here, still cooking, still sarcastic, and still proving that numbers don’t get the final say. sarcoidosis

Grieving the Old Me, Embracing the New: A Chronic Illness Journey with Humor, Heart, and Sarcoidosis

Chronic illness can feel like a grief rollercoaster — denial, anger, and all the feelings in between. As someone living with sarcoidosis, heart failure, and a whole list of “don’ts,” I’ve stumbled my way through the stages of grief and found acceptance in the most unexpected places, like garden pots I can’t lift and reversible pulmonary hypertension. Here’s my real talk on surviving, adapting, and laughing through it all — with a side of stubborn positivity and sarcasm.

Searching for Peace in a World Full of Self-Help and Sarcoidosis

In a world overflowing with self-help books and symptom-specific blogs, what are we really searching for? As someone living with sarcoidosis, chronic illness, and a whole choir of organs trying to retire early, I’ve noticed that beyond the medical terms and hashtags, the word we’re truly chasing is simple: peace. My most-read post ever proved it.

Breathing Lessons From a Not-So-Normal Life With Sarcoidosis and Oxygen Tanks

Living with sarcoidosis, heart failure, and a body that treats oxygen like a luxury upgrade means learning to laugh at what hurts, carry what scares you, and drag that oxygen tank around even when you’re tired of feeling “not like the man you used to be.” This is my messy, honest, slightly sarcastic reminder that using oxygen doesn’t mean giving up—it means choosing to stay alive.