Why I Absolutely Can’t Stand Halloween (And What It Says About Us)

As a chef battling sarcoidosis and heart failure, debris from a life that refuses to behave, I’m here to tell you why Halloween — creepy skeletons, gore-fest lawns, serial-killer mannequin dioramas and all — feels wrong in a way that psychology backs up. If you’ve ever felt alienated by the “fun” of Halloween or want to understand why it grates on your nerves (and mine), read on for a mix of sarcasm, heart, and insight into fear, ritual and chronic illness living.

•The High Price of Staying Alive: Chronic Illness, Insurance, and America’s Health Care Circus

Living with chronic illness means juggling more than fatigue and pain—it’s the nonstop cost of staying alive. From $280,000 heart surgeries to sky-high insurance premiums, surviving in America’s healthcare system feels like a full-time job. Here’s what it’s really like to navigate life, love, and medical debt when your body—and the system—won’t cut you a break.

Living with a Heart That Beats on Borrowed Time: My Journey with Heart Failure and an AICD

In 2007, a routine heart procedure turned into a life-changing diagnosis: heart failure. Eighteen years later, I’m still here—living with sarcoidosis, a defibrillator in my chest, and the constant awareness that my next heartbeat might depend on a tiny piece of metal and code. This is what surviving with an AICD really feels like—equal parts miracle, nuisance, and reminder to keep going.