Prednisone and sarcoidosis have been in a long-term relationship with my body for years, and lately they’ve added a new plus-one: diabetes. So I tried a CGM for “easy” blood sugar tracking—because if I have to poke my fingers all day, I’m going to start charging admission. What I didn’t expect was a tech romance full of false reassurance, surprise pain, and numbers that looked comforting… until the lab results showed up with receipts.
•Waiting Rooms, Rude Receptionists, and the Old Lady Who Had My Back
After twenty years of living with sarcoidosis, heart failure, and more hospital visits than I can count, I’ve learned one thing: healthcare workers can make or break your experience. Some are angels in scrubs; others act like you’ve ruined their day just by existing. Here’s a raw, unfiltered look at what happens when compassion gets lost in the waiting room.
•Roller Skating With Sarcoidosis: Grieving My Old Body (Without Turning It Into a Life Sentence)
I saw a guy land a ridiculous roller-skating trick in a beach town and my brain immediately volunteered my body for a stunt it absolutely did not agree to. Living with sarcoidosis has taught me that nostalgia can be sweet, savage, and weirdly funny—and sometimes the bravest move is not proving anything at all.
When Strangers Grab Your Phone: Realizing Just How Much of My Life Lives in This Glass Box
Ever had someone snatch your phone while you were just trying to show them a picture? Twice in one day, it hit me how much of my entire life—accounts, passwords, memories, even my brain power—now lives inside this little iPhone. As a chef with sarcoidosis and heart failure who once memorized entire bank account numbers and directions without GPS, I’m wrestling with the good, bad, and ridiculous sides of tech dependence.
Why I Stopped Believing in Confession (And Why Being a Decent Human Shouldn’t Need a Reset Button)
Raised in a Catholic school from age five to sixteen, I once believed in the power of confession—kneeling in a booth, spilling sins, walking out with a “clean slate.” But over time, I realized many used it as a free pass to behave badly, gossip shamelessly, or worse. In this heartfelt reflection, a chef, debut novelist, and chronic illness warrior shares how religion, family expectations, and a gossiping “good Catholic” co-worker pushed him away from organized faith—and toward a simpler belief: just be a good human.
