Sarcoidosis, Side Effects, and the Grapefruit That Tried to Take Me Out: A Love Letter to Doing Your Own Research

You know that moment when the doctor confidently hands you a prescription like it’s a golden ticket back to Normal Person Land—no questions, no footnotes, just “take this twice a day forever” and try not to die in the meantime? Yeah. In my early sarcoidosis era (back when I was younger, more trusting, and still believed “the system” had my back), I learned the hard way that the danger isn’t always the pill… sometimes it’s what you’re sipping while you swallow it. And the culprit was sitting in my fridge, looking innocent and delicious.

Exercising With Chronic Illness: Heart Failure, Sarcoidosis, and Recovery

A new episode of A Body Rebels: A Chronic Illness Podcast is now available. In this episode of A Body Rebels: A Chronic Illness Podcast, I talk about exercise while living with heart failure, sarcoidosis, and severe fatigue after movement. A walk feels good while I’m outside, then the real cost shows up at home …

My Mother, Mr. X, and the Kind of Regret That Doesn’t Knock First

In the middle of managing sarcoidosis and all the glamorous paperwork life insists on assigning, I keep circling back to one voice I can still hear clearly: my mother’s—suddenly brighter, younger, almost mischievous—when an old name resurfaced after decades. It started as a phone call and ended up becoming one of those stories that quietly rearranges your insides… especially when you never get the ending you thought you’d get.