Private Chef, Writer & Podcaster
I’ve spent my whole life being invited everywhere while secretly plotting my escape route to the nearest quiet corner with a book. Then sarcoidosis showed up, and suddenly everyone has Opinions about what “support” should look like. Here’s the thing: I don’t need a crowd. I need calm, a steady hand to hold, and enough peace to breathe.
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. In this episode, I talk about a driver’s license renewal that turned into an unexpected panic at the DMV. One question on one form forced me to think about my AICD, heart medication, and the fear of losing the independence I …
Continue reading "Medical Honesty, Driving, and the Fear of Losing Independence"
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. Why does time seem to move faster once chronic illness becomes part of your life? In this episode of Surviving Chronic Illness: Life In A Body That Rebels, I reflect on the strange speed of adulthood, the emotional weight of creating …
Continue reading "When Time Speeds Up With Chronic Illness And All You Need Is Peace"
Some mornings hit differently. You wake up, scan your body for complaints, remember everything you’ve been through with sarcoidosis… and then realize something unexpected: life is still showing up for you. Not perfectly. Not pain-free. But persistently, stubbornly, beautifully present. This is one of those mornings.
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. In this episode, I’m sharing what went through my mind after someone newly diagnosed with neurosarcoidosis told me that hearing my voice helped calm their fear. I’ve lived with sarcoidosis for twenty years, and during that time, my relationship with mortality …
Continue reading "Living With Chronic Illness Without Living in Fear of Death"