Chronic Illness and Marriage: How Sarcoidosis Changed Our Lives

A new episode of A Body Rebels: A Chronic Illness Podcast is now available. I’ve lived with sarcoidosis for twenty years, but my wife has lived with its consequences alongside me. After forty-five years together, I’ve begun thinking about everything chronic illness has changed in our marriage, including the freedom we once enjoyed, the plans …

The Hidden Cost of Chronic Illness: Insurance Denials and Medical Bills

A new episode of A Body Rebels: A Chronic Illness Podcast is now available. Living with chronic illness brings financial costs beyond copays and prescriptions. I spend hours untangling insurance denials, prior authorizations, confusing bills, and paperwork nobody counts as work. In this episode, I talk about the energy lost to phone calls, the anxiety …