Living with sarcoidosis, heart failure, and chronic illness has taught me a lot—mostly what doesn’t help. This week’s podcast episodes explore why I walked away from support groups, how I stopped complaining, and what it really takes to survive life with a rebellious body and a stubborn sense of humor.
Respect My Air: A Chef’s Rant on Smokers, Scents, and Secondhand Stupidity
I don’t know who needs to hear this, but cigarette smoke is not an air freshener. For those of us living with sarcoidosis or any lung condition, your “right to smoke” feels like my right to suffocate. Here’s one chef’s not-so-gentle reminder that public air is shared property—so stop blowing toxins in my direction and pretending it’s perfume.
Prednisone Made Me Do It: My Sweet Affair with Sugar and the Search for a Safer Fix
Living with sarcoidosis means managing symptoms, medications, and side effects that can turn your body into a science experiment. When prednisone turned my metabolism into a full-blown sugar-addicted monster, I went hunting for sweeteners that wouldn’t kill me faster than the disease. Here’s how I learned that everything—yes, even the stuff labeled “natural”—comes with fine print.
I’m Not Sick—Just Complicated
After years of battling sarcoidosis and heart failure, I’ve realized that “sick” is just a word—and it doesn’t define me. Between migraines, acupuncture needles, and medical humor that borders on dark roast, I’m still standing, breathing, and occasionally brisk-walking on flat ground.
When A Hospital Check-In Feels Like an Interrogation: A Chef, an MRI, and Too Many Personal Questions
Before my MRI next week, a simple online check-in turned into a bizarre quiz about my private life, sprinkled with the usual sarcoidosis-related precautions—but what came next left me blinking at the screen and wondering who exactly was getting scanned here. Let’s just say the questions took a turn I did not see coming.
