Growing up in the Caribbean taught me a lot about salty air, stubborn lungs, and the strange medical advice that somehow worked. Decades later, living with sarcoidosis and trying to survive winter colds, I stumbled across something unexpected that brought those memories rushing back… but whether it’s brilliant or ridiculous is still up for debate
Trading Cold Showers for Sarcoidosis: From Caribbean Surf to Upstate Snow
It wasn’t the cold air that woke me up—it was the memory of cold showers in the Caribbean, decades before I knew the word “sarcoidosis” would take over my vocabulary. One frosty morning in 2025 Upstate New York, I stepped into a hot shower and was transported back to simpler times when my lungs were clearer and the water was somehow always warmer, even when it wasn’t. And yeah, maybe I didn’t know how much those ocean swims mattered… until they weren’t an option anymore.
When Dreams Rub Back: My Massage Therapy Detour, Interrupted—but Not Denied
Ever had a dream that hung around like glitter you can’t sweep away? Mine involved massage therapy, a mini-stroke, an upgraded heart, and a stubborn case of sarcoidosis trying to steal the spotlight. Spoiler: despite the plot twists, the story isn’t over…
Why Fatigue Hits Harder Than a Chef’s Knife: Living with Sarcoidosis, Heart Failure, and Zero Patience
Tired? Try living with sarcoidosis, heart failure, and a side of snark. In this funny, raw, and relatable chef’s diary of chronic fatigue, I explore what happens when your brain wants to do everything and your body files for early retirement. Fatigue, chronic illness, medication side effects, and stubborn hope collide in this reflective rant — served with humor and a bold refusal to give in.
Riding the Energy Roller Coaster: Life With Sarcoidosis, Heart Failure, and a Body That Changes Its Mind Daily
Living with sarcoidosis, heart failure, and a grab-bag of medications means my energy cycle runs on its own chaotic schedule. Some days I’m unstoppable; others I’m barely upright. Here’s how I navigate the ups, downs, and surprisingly emotional middle ground of chronic illness.
