Private Chef, Writer & Podcaster
Living with sarcoidosis and heart failure means juggling oxygen checks, blood pressure readings, fluid retention tests, and everything else my body dreams up when it’s bored. Here’s how I track my symptoms, keep my numbers stable, and try to stay sane while traveling, working, and dealing with water retention that refuses to follow the rules.
Living with chronic illness takes more than blind faith—it takes grit, humor, and a little rebellion. As a chef with sarcoidosis and heart failure, I’ve seen how spirituality can both heal and harm when people rely too heavily on divine intervention instead of their own strength. Here’s my honest take on faith, health, and the real work of living through it.
Living with sarcoidosis and heart failure means even simple tasks can feel like climbing a mountain. This raw, heartfelt reflection from a private chef and debut novelist explores chronic fatigue, aging, and the exhausting work of keeping up appearances while living with a chronic illness.
Even before summer hits, my body—and soul—longs for sunlight and salt air. For those living with chronic illness, like sarcoidosis, the dream of a beach getaway isn’t just about fun—it’s about healing, freedom, and survival.