Ever waited for a blog post like it was your favorite dish at a slow-cooking restaurant? This chronic illness chef with sarcoidosis doesn’t post daily—and that’s okay. Here’s why blog consistency isn’t the cure-all, especially when life, health, and heart failure come to dinner uninvited. (Yes, it’s called chronic illness for a reason.)
The Month I Waited Saved My Life: Living With a Defibrillator, Fear, and Sarcoidosis
Waking up to heart failure, sarcoidosis, and a life sentence of meds wasn’t in my five-year plan. Neither was an implantable defibrillator with discontinued leads that could’ve killed me. Here’s how one month of stubborn hesitation saved my life. Chronic illness, heart failure, and sarcoidosis survivors—this one’s for you.
The Forgotten Days: What Living With Sarcoidosis Taught Me About the Ordinary Moments Between the Milestones
Living with sarcoidosis has shown me that the quiet moments between the most memorable experiences often hold the greatest significance in life.
How I Became a Medical Mystery (Or: Why My Doctor Thinks I’m Immortal)
A reader wrote to me with a blunt question: how the hell am I still alive and semi functional with sarcoidosis, heart failure, and a heart that occasionally tries to be creative with rhythm Just between us the answer is far more chaotic and heartfelt than any clinical chart will ever show Sarcoidosis taught me to take every prognosis with salt and faith and maybe a dash of rebellion
Why My Doctor’s Office Needs a Mute Button (and Other Adventures in Patient Privacy)
We’ve all handed over our medical privacy to forms and HIPAA posters, but why does the reception desk still broadcast your address and phone number like morning radio? As someone juggling sarcoidosis, heart failure, and the joy of frequent waiting rooms, I’ve turned accidental oversharing into a personal crusade. Welcome to the absurdly human side of patient privacy—where your lungs aren’t the problem, but your info is.
