Living with sarcoidosis is like starring in a medical drama no one else can see—one where you look perfectly fine on the outside while your organs do the cha-cha backstage. Back in 2011, when all of this felt new and terrifying, I kept most of it to myself. Now, looking back from 2025, I can’t help but revisit how invisible everything looked… especially to everyone who insisted I “didn’t look sick.” There’s a lot more to the story, but you’ll have to come inside for the rest.
Why I Walked Away From Support Groups (And Found My Voice Instead)
Living with sarcoidosis is already its own exhausting full-time job, so the idea of a support group sounded…promising. Or at least not disastrous. But back in the early 2010s, when my lungs and heart were misbehaving like rebellious teenagers, the search for “people like me” turned into something far stranger than comforting. I won’t spoil the whole story here, but let’s just say it involved Christmas ornaments, long train rides, and me realizing the person I actually needed to find was somewhere else entirely. Maybe someone like you.
Maybe Your Life’s Purpose Isn’t Huge—But It’s Still Enough
Between the dishes, the meds, and the chaos of chronic illness, it’s easy to wonder if you were meant for something bigger. But what if your true purpose isn’t grand at all—just one quiet, human act that changes everything? This heartfelt reflection explores finding meaning in small kindnesses while living with sarcoidosis and all of life’s messy imperfections.
When TikTok “Doctors” Go Rogue: Real Healing Isn’t a Trend
Herbal and homeopathic medicine can absolutely help chronic illness like sarcoidosis and heart failure—but TikTok wellness hacks and unverified “miracle cures” are another story. In a world where influencers push detoxes, conspiracies, and half-baked science, it’s time to talk about what real healing looks like—and why you should trust research, not ring lights.
When an Editor is A CROOK: A Cautionary Tale for Writers
When you’re a writer with chronic illness juggling deadlines, the last thing you expect is your editor ghosting you mid-contract. This cautionary tale dives into how one “faith-filled” editor turned out to be a crook—and what every writer, especially those managing sarcoidosis or other chronic conditions, can learn about protecting themselves (and their wallet).
