Private Chef, Writer & Podcaster
Living with sarcoidosis and heart failure means sharing life with a quiet, loyal device that tracks every flutter, every scare, and every stubborn heartbeat. This is the story of the strange, funny, and unexpectedly comforting friendship that has kept me alive for nearly two decades.
A reader from Europe recently scolded me about the “slice-and-dice” American medical system—but as someone living with sarcoidosis, heart failure, and a knack for collecting diagnoses like airline miles, aggressive treatment is the reason I’m still breathing. Here’s what really happened, why “wait and see” nearly destroyed someone else’s life, and why I’ll take over-tested over overlooked any day.
A heartfelt, humorous look at loving someone who stands by you through sarcoidosis, heart failure, and every medical plot twist life throws at you — a reminder that the strongest medicine is the person who refuses to let go.
Dealing with chronic illness is hard enough, but throw family dynamics, silent siblings, and a surprise heart failure diagnosis into the pot and watch the whole stew boil over. This honest, humorous look at navigating distance, disappointment, and sarcoidosis reminds you how choosing peace sometimes means choosing yourself.
Living with heart failure and sarcoidosis means juggling defibrillators, dark humor, and the calm certainty that hospital staff really should know your final wishes before things get dramatic. This honest, witty look at advanced directives, chronic illness planning, and medical chaos reminds readers why self-advocacy matters—and why humor still wins.
Tate Basildon 