The Hidden Cost of Chronic Illness: Insurance Denials and Medical Bills

A new episode of A Body Rebels: A Chronic Illness Podcast is now available. Living with chronic illness brings financial costs beyond copays and prescriptions. I spend hours untangling insurance denials, prior authorizations, confusing bills, and paperwork nobody counts as work. In this episode, I talk about the energy lost to phone calls, the anxiety …

Chronic Illness, Brain Fog, Fatigue, and the Things I Didn’t Finish

A new episode of A Body Rebels: A Chronic Illness Podcast is now available. Living with chronic illness changes what an ordinary to-do list means. My iPhone reminders might show a phone call, an errand, or a message, while leaving out the fatigue, brain fog, symptoms, recovery time, and decisions surrounding each task. In this …

Will My Doctors Stop Trying If I Refuse a Lung Transplant?

A new episode of A Body Rebels: A Chronic Illness Podcast is now available. I canceled my lung transplant evaluation after months of research, prayer, and conversations with my wife, but I still want active medical care. Living with sarcoidosis and heart failure has made treatment decisions deeply personal, especially when recovery would ask so …