Private Chef, Writer & Podcaster
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. I missed an episode this week, and there was a very good reason. My fifth attempt to come off prednisone after twenty years hit me harder than I ever expected. With methotrexate now being used as a steroid-sparing medication, I’ve managed …
Continue reading "Prednisone Withdrawal: When My Body Finally Said Enough"
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. When a chronic illness flare sends me back to bed with oxygen, physical exhaustion can quickly become fear about my future. I start wondering whether I’ll recover or whether my independence is slipping away permanently. I used to hide those fears …
Continue reading "The Bad Day I Fear Won’t End: Chronic Illness and an Uncertain Tomorrow"
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. In this episode, I talk about a driver’s license renewal that turned into an unexpected panic at the DMV. One question on one form forced me to think about my AICD, heart medication, and the fear of losing the independence I …
Continue reading "Medical Honesty, Driving, and the Fear of Losing Independence"
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. Why does time seem to move faster once chronic illness becomes part of your life? In this episode of Surviving Chronic Illness: Life In A Body That Rebels, I reflect on the strange speed of adulthood, the emotional weight of creating …
Continue reading "When Time Speeds Up With Chronic Illness And All You Need Is Peace"
A new episode of A Body Rebels: A Chronic Illness Podcast is now available. In this episode, I’m sharing what went through my mind after someone newly diagnosed with neurosarcoidosis told me that hearing my voice helped calm their fear. I’ve lived with sarcoidosis for twenty years, and during that time, my relationship with mortality …
Continue reading "Living With Chronic Illness Without Living in Fear of Death"